In order to carry out its studies to improve cancer outcomes the CRUK Clinical Trials Unit (CTU) Glasgow may use personally-identifiable information. The CTU must ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in our research. This means that when you agree to take part in a research study, we will use your data only in the ways needed to conduct and analyse the research study. Details of how to withdraw from a CTU study are given in the study specific Patient Information Sheet you received, but note that your rights to access, change or move your information already collected are limited, as we need to manage your information in specific ways in order for the research to be reliable, accurate and comply with regulatory requirements. To safeguard your rights, we will use the minimum personally-identifiable information possible.
Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.
Your data will have been obtained from your medical notes and study specific questionnaires. We may share your data with researchers outside the CTU for the purposes of cancer research, but any such data will be anonymised. This is further detailed in the study Patient Information Sheet you received when you entered the study. Please note that we may hold your data for an indefinite period, as long as it is deemed potentially useful for the purposes of cancer research.
If you wish to raise a complaint on how we have handled your personal data, you can contact the Data Protection Officers who will investigate the matter (see contact details below). If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner's Office (ICO).
NHS Greater Glasgow and Clyde *
Data Protection Officer
NHS Greater Glasgow and Clyde
1 Smithhills Street
Level 2
Paisley
PA1 1EB
Tel: 0141 278 4774
E-mail: [email protected]
University of Glasgow *
Data Protection Officer
Data Protection & Freedom of Information Office (Tay House)
University of Glasgow
Glasgow
G12 8QQ
Tel: 0141 330 3111
E-mail: [email protected]
* CTU studies will always come under the jurisdiction of NHS Greater Glasgow and Clyde, but in some instances the University of Glasgow may also have responsibilities.
